It is five months since my dearest friend and a supporter of TGism passed on. Those months are described in a more personal blog. This blog is a new chapter.
A little background: most of my life was spent in one relationship. I have known Pauline since schooldays. She was aware of my TGism and tried to accept it, but was unable; she had her own problems associated with hoarding, which I tried to accept, but likewise was unable. After I started going to Barbara's dressing service, I could not deny my TGism and, simultaneously, P's problems started becoming unmanageable . We were very fortunate in having two properties and 'simply' separated, but remained in close contact and supported each other at family events. My fondness for Barbara developed as she helped Nikki flourish. However, as that was happening, Barbara started having serious health issues, resulting in numerous laparotomies and an ileostomy. Her husband had no interest in her and I took on a caring and support role for her and our love for each other grew. Her husband did not care, as long as he did not have to look after her. Finally, her husband's attitude wore her down so much that she left him and with the great help of Age UK she finally settled in sheltered accommodation. For the first time since she was 16 she was living her own life. She loved her little flat, but it also became a prison as her health deteriorated still further, both physically and mentally. Everyone who met her was amazed at her tenacious love of life, but finally on 28 June 2017 she passed away. All the time we were together, P was aware of our closeness and she became increasingly supportive of me as Barbara's health declined. Although they never met, Barbara was also concerned about P's well-being. In Spring 2017, P developed a tremor in her left hand. The tremor became increasingly pronounced and P started exhibiting the symptoms of Parkinson's disease.
Following Barbara's death I took up water colour painting and threw myself back into the garden. I also took up dressing in earnest, something that had started to slip as Barbara's needs had become ever more frequent.These were all positive and P also suggested that I take up Greek evening class again, and if I were to do so she could probably join me for free (as someone who teaches Adult Ed, herself). That seemed to be another good diversion for me, so I agreed. By the time of the first class, P's condition was quite obvious and she was starting to have difficulty walking. A referral to a consultant neurologist was arranged and after some visits to her GP, he has prescribed Sinemet. We wait now until the January consultation.
Clearly, if P has the disease, which seems likely (her mother suffered from it), it will be life-changing for her and, by default, for me. I will not countenance the idea of not being there to support her. In that light, I took a first step yesterday. In May I visit Ireland. I have a cottage booked which can sleep up to four. Afterwards I plan to visit my friend Pamela. It is entirely feasible for me to take P by car over to Ireland and then, en route to Pamela's, to take her to Knock airport where she can get a flight back to Gatwick and home. We discussed it yesterday and were agreed that she must take whatever opportunity arises for her to enjoy the time she has. Que sera sera.
Anyway, that is an introduction, to set the scene for my new life as a stay-at-home Tgirl (for now, anyway).
As you see I found your Blog. You know how much I empathize with your situation having been there myself. As I may have said before, take care of your health by eating nutritious foods, exercise walking, and drink plenty of water and fluids. This is the only way you can truly be of help to others. The dressing, painting, and language studies are excellent choices to keep you mentally healthy and alert. Keep on Blogging as you know I have my "eyes on you"! Love, Gia xx
ReplyDeleteGia, thanks for your comments, which are all true, but there's a job to be done on me as I tend to get SAD and to hibernate over winter! The painting is coming along slowly but enjoyably as is the Greek. My weepy eyes are still with me, so I've not been dressing for the camera, but I have plans. The Pensiero di Natale picture was lovely and I think a blue dress with a blue hair ribbon may be appearing soon, together with paints! Love Nikki xxx
DeleteWhat a lovely post, Nikki. Life can be very sad and unfair. Good people make it bearable, even enjoyable. Both P and Barbara are/were lucky to have you you in their lives, As Gia has said, you also need to look after yourself. Strength always needs replenishing. Mary and I are looking forward to your visit next May. P's welcome to come visit too. In the meantime, don't be SAD! Think blue skies and pretty dresses in Carlingford in May and no Brexit Border in sight! Love Pamela xxx
ReplyDeletePamela, I'm so glad you found the blog. This is another learning curve for me! I hope to populate it with pictures etc. when I have found out how. Blue skies and pretty dresses in Carlingford sounds wonderful ... much better than the nightly Shipping Forecast reports. It is very kind of you to offer a welcome to Pauline (P) and I shall mention it to her, but there is the hurdle of her acceptance of Nikki to consider. That's probably something for a blog entry! I hope your current spate of work eases in time for you to have a long and enjoyable run up to Christmas. Love Nikki xxx
DeleteI too am beset by SAD. I seem to want to sleep late and take a nap after only being up four hours, then I'm awake all night. Aside from me being an Owl naturally, I am most creative and alert during the night, which means most daylight household chores are done one at a time and then I nap.
ReplyDeleteThe sentimentality of the season, the things you touch that were Barbara's, the inclement weather do want you to weep. You will and each time it will be deeper and more heart-wrenching, but ultimately blessedly cathartic. Been there, done that - today. I think I will have a Therapy Tuesday.
Your recent posts on Flickr and comments have inspired me anew.
You too! I fall asleep morning, afternoon and evening, only to wake up at 2am and watch TV most of the night until about 6am. It has messed with my 2-day working week - now I work a few hours a day over four days as that seems more productive. I used to be a night-person when I was young but when I became involved working in conservation and spent days out in the countryside that all changed.
DeleteThe weepy eyes are easing. The War Horse concatenation I wrote about and the music associations still affect me, in generating a flood of memories, but I am only now tackling the hardest thing - the answerphone, which was full. I think it's a generality that people don't leave messages when they are happy, but when they are in need.
I thoroughly enjoyed doing the Pensiero di Natale imitation. I had the camera set up and then quickly did most of the painting. I then had to change camera angles several times to try and get as close as I could to the little girl's pose and in between the painting dried sufficiently for me to add more detail. It was all done within the hour! And thanks for your advent series ... it's fun and getting the camera angles and lighting is clever.
Further comment. I think it is wonderful that you are planning this trip to Ireland. Bon voyage!
ReplyDeleteThanks! I wonder where might be the next stop?
DeleteI've found your blog, Nikki, and look forward to reading it. Don't forget to look after yourself, too. Sue x
ReplyDeleteSue, I'm so pleased you have. I doubt this will ever get as interesting as your blog, but the complications of my life make are such that I felt it only right that friends understand the what's and why's that shape my day to day life (and my incessant frock buying!) Nikki xxx
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